The ALS Association

Reviewed by the Sacramento Region Community Foundation

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$30,000 Goal

ALS, or amyotrophic lateral sclerosis, is a progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord. There is no cure for ALS yet. 

By leading the way in global research, providing assistance for people with ALS through a nationwide network, coordinating multidisciplinary care through certified clinical care centers, and fostering government partnerships, The Association builds hope and enhances quality of life while aggressively searching for new treatments and a cure. 

The ALS Association's core pillars include: care services, advocacy, and global research. 

Care Services

The ALS Association in Greater Sacramento serves 284 people living with ALS and their families. One hundred percent of our services are free of charge. 

We provide local care throughout the following 24 counties: Alpine, Amador, Butte, Calaveras, Colusa, El Dorado, Glenn, Lassen, Modoc, Mono, Nevada, Placer, Plumas, Sacramento, San Joaquin, Shasta, Sierra, Siskiyou, Sutter, Tehama, Trinity, Tuolumne, Yolo, and Yuba.

Programs and services we offer to meet the needs of those living with ALS and their caregivers:

  • Five Multi-Disciplinary Clinics serving the Greater Sacramento area
    • UC Davis Multidisciplinary ALS Clinic: Certified Treatment Center of Excellence
    • Forbes Norris ALS Multidisciplinary Clinic
    • Kaiser ALS Multidisciplinary Clinic 
    • Redding ALS Multidisciplinary Clinic
    • ALS Neuromuscular Multidisciplinary Clinic Mather: Serving Veterans
  • Support Groups for People Living with ALS and Their Caregivers
  • Educational Training Programs and Resources
  • Equipment Loan Program including Durable Medical Equipment & Communication
  • Remote Language Interpretation Program
  • Virtual Home Modification Program
  • Quality of Life Grants
  • Home and Video Evaluations

Advocacy

Our advocacy work focuses on educating and mobilizing members of Congress and the Administration in a nonpartisan way to achieve our mission of discovering new treatments and a cure for ALS, and serving, advocating for and empowering people living with ALS to live their lives to the fullest.

The ALS Association is aggressively advocating for legislative priorities that will help to:

  • Find New Treatments and Cures
  • Optimize Current Treatments and Care
  • Prevent or Delay the Harms of ALS

Global Research

We have the premier ALS research program in the world. Currently, The ALS Association is funding 162 research projects nationwide.

From individual projects to global collaborations, we provide funding to experts in a variety of scientific focus areas critical to advancing the search for treatments and a cure for ALS. Thanks to the donations raised during the ALS Ice Bucket Challenge, we're now spending three times more on ALS research than before summer 2014.

Giving Activity

Mission

To discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.

Needs

Grants for families living with ALS: It costs approximately $250,000 annually to care for someone with ALS. We provide grants to support ALS families in financial distress, purchase and deliver supplies, provide professional in-home caregiving support, and assist with medical copays.

Support Group: Protecting our community's mental health and building a supportive network is more important than ever. Our support group meetings and care consultations with ALS staff help to provide a sense of hope and connection, uplifting our ALS community.

Durable medical equipment loans: The need for durable medical equipment and augmentative communication device loans continues to grow. The ALS Association loans hundreds of pieces of equipment and speech communication devices annually to the families who need it most. Loaned equipment includes power wheelchairs, speech generating devices, smart home technology, lift systems, walkers, shower chairs, and more.

Equity Statement

The ALS Association is dedicated to cultivating an environment in which all voices are raised and heard as we serve, engage, advocate for, and empower people with ALS. We will maintain a community that resolves inequities that impede progress in the fight against ALS and ensures that our mission-driven work is informed by multiple perspectives and experiences.

Organization Data

Summary

Organization name

The ALS Association

other names

ALSSAC

Mission Category

Health Care

Operating Budget

$1,000,001-$5 million

Organization Need

Funding: Program, Technology

Demographics Served

Women/Female-identifying

BIPOC Leadership

Executive Director/CEO

Counties Served

El Dorado, Placer, Sacramento, Yolo

Address

5701 Sunrise Blvd
CITRUS HEIGHTS, CA 95610

Service areas

Sacramento, CA, US

Yolo, CA, US

El Dorado, CA, US

Placer, CA, US

San Joaquin County, CA, US

Phone

9168778032

fax

916-979-9271

Social Media