Responsive grants for families living with ALS: It costs approximately $200,000 annually to care for someone with ALS. As we continue to reel from the economic impacts of the pandemic, our goal is to ensure that no further financial harm is caused to families living with ALS. The Chapter assists with responsive grants to support ALS families in financial distress, purchase and deliver supplies, provide professional in-home caregiving support, and assist with medical copays.
Access to Telemedicine: Those living with ALS need access to multidisciplinary clinical care, even when meeting with their doctors in-person risks their health during the COVID-19 pandemic. To keep ALS families safe, the Chapter is working to supply and install technology in their homes that will give them access to virtual medical appointments with physicians and clinical care teams.
Virtual Support Programming: In times of isolation and fear, protecting our community's mental health and building a supportive network is more important than ever. Our Virtual Support Group Meetings and care consultations with Chapter staff help to provide a sense of hope and connection, uplifting our ALS community through their daily battles.
Durable medical equipment loans: The need for durable medical equipment and augmentative communication device loans continues to grow. The Chapter loans hundreds of pieces of equipment and speech communication devices annually to the families who need it most. Loaned equipment includes power wheelchairs, speech generating devices, smart home technology, lift systems, walkers, shower chairs, and more.