ALS Association Greater Sacramento Chapter

Reviewed in 2022 by the Sacramento Region Community Foundation

$39,166 raised by 132 donors

52% complete

$75,000 Goal

For the past 34 years, The ALS Association Greater Sacramento Chapter has been a leader in the fight against ALS by seeking treatments and cure for ALS through global research and nationwide advocacy, while empowering people living with ALS and their families to live fuller lives by providing them with compassionate care and support. The Chapter serves our community through three core pillars: patient care, public policy, and global research. These three priority areas together will help us achieve our vision of a world without ALS. The Chapter's comprehensive care services are designed to holistically support the needs of people living with ALS and their caregivers throughout their journey with the disease. We provide information, referrals, support group meetings, in-home evaluations, loaned speech communication devices, and free loaned durable medical equipment to over 300 families annually. Additionally, the Chapter supports two Certified Centers of Excellence in the Greater Sacramento region, UC Davis multidisciplinary ALS Clinic and Forbes Norris MDA/ALS Research Center.

Mission

To discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.

Needs

Responsive grants for families living with ALS: It costs approximately $200,000 annually to care for someone with ALS. As we continue to reel from the economic impacts of the pandemic, our goal is to ensure that no further financial harm is caused to families living with ALS. The Chapter assists with responsive grants to support ALS families in financial distress, purchase and deliver supplies, provide professional in-home caregiving support, and assist with medical copays.

Access to Telemedicine: Those living with ALS need access to multidisciplinary clinical care, even when meeting with their doctors in-person risks their health during the COVID-19 pandemic. To keep ALS families safe, the Chapter is working to supply and install technology in their homes that will give them access to virtual medical appointments with physicians and clinical care teams.

Virtual Support Programming: In times of isolation and fear, protecting our community's mental health and building a supportive network is more important than ever. Our Virtual Support Group Meetings and care consultations with Chapter staff help to provide a sense of hope and connection, uplifting our ALS community through their daily battles.

Durable medical equipment loans: The need for durable medical equipment and augmentative communication device loans continues to grow. The Chapter loans hundreds of pieces of equipment and speech communication devices annually to the families who need it most. Loaned equipment includes power wheelchairs, speech generating devices, smart home technology, lift systems, walkers, shower chairs, and more.

Get Involved

View our current participation opportunities.

In-Person Volunteering


Volunteer with us at the Walk to Defeat ALS!

Elk Grove Regional Park

September 17, 2022

Organization Data

Summary

Organization name

ALS Association Greater Sacramento Chapter

other names

ALSSAC

Tax id (EIN)

68-0159292

Mission Category

Health Care

Operating Budget

$500,001-$1 million

Organization Need

Funding: Program, Technology

Demographics Served

Individuals with disabilities, Seniors, Veterans, Low-income individuals/families

Address

5701 Sunrise Blvd.
Citrus Heights, CA 95610

Service areas 0

Sacramento, CA, US

Yolo, CA, US

El Dorado, CA, US

Placer, CA, US

Amador, CA, US

Phone

916-979-9265

fax

916-979-9271

Social Media 0

How can we help?

Suggested articles

  • Your Organization Dashboard
  • How to Cusomize your Organization Page
  • How to add or remove an admin from my organization's account