ALS Association Greater Sacramento Chapter


To discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.

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Address: 2717 Cottage Way, Suite 17
Sacramento, CA 95825
County or Parish: Sacramento
Primary NTEE: Diseases Disorders & Medical Disciplines 
Sub NTEE: Nerve, Muscle & Bone Diseases 
Executive Director: Amy Sugimoto
Contact Email: tellis@alssac.org
Primary Phone: 916-979-9265
Website: http://www.alssac.org
As the leaders in the fight against ALS, The ALS Association Greater Sacramento Chapter has been serving their mission of seeking a treatment and cure ALS through global research and nationwide advocacy, while empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support for the past twenty-eight years. The Chapter provides three core services: patient care, public policy, and global research, and believes all each are interdependent on one another in order to achieve our vision of a world without ALS. Our comprehensive care services are designed to holistically support patient and caregiver needs throughout their journey with the disease. Our chapter provides information, referrals, support group meetings, in-home evaluations, loaned speech communication devices, and free loaned durable medical equipment to 300 patients each year. Additionally, we provide support to two Certified Centers of Excellence in the Greater Sacramento region that specialize in ALS care, and we provide in kind support to the Kaiser ALS clinic.
Capacity Building in Rural Communities: A .50 FTE Social Worker is needed to expand services to rural Northern California.

The Durable Medical Equipment Program: ALS patients rely on medical equipment to move. Funding is needed to staff a .25 FTE to administer the free vital program functions such as equipment pick-up, delivery, maintenance, and staffing.

Public Policy: Funding is needed to train patient advocates on effectively sharing their story with legislative representatives on Capitol Hill. The training will culminate in meeting with legislators where patients share their stories, ultimately affecting positive change for those affected by ALS through legislation.

Communication Program: Most patients will experience the loss of their voice as a result of ALS. With technology, patients are able to maintain their speech. We assist patients with attaining professional in-home speech evaluations; lead communication workshops and trainings, and purchase low-cost communication solutions.

Support Groups: Facilitated support groups offer patients and caregivers the opportunity to share the challenges of living with ALS. These meetings arm patients with the educational tools and emotional support to navigate ALS. Funding will be used to expand these services to rural counties.
Our top needs:
  1. Funding: Program - Public Policy: Funding is needed to train patient advocates on effectively sharing their story with legislative representatives on Capitol Hill. The training will culminate in meeting with legislators where patients share their stories, ultimately affecting positive change for those affected by ALS through legislation.
  2. Funding: Program - Capacity Building in Rural Communities: A .50 FTE Social Worker is needed to expand services to rural Northern California.
  3. Funding: Program - The Durable Medical Equipment Program: ALS patients rely on medical equipment to move. Funding is needed to staff a .25 FTE to administer the free vital program functions such as equipment pick-up, delivery, maintenance, and staffing.
  4. Funding: Unrestricted - Support Groups: Facilitated support groups offer patients and caregivers the opportunity to share the challenges of living with ALS. These meetings arm patients with the educational tools and emotional support to navigate ALS. Funding will be used to expand these services to rural counties.
  5. Funding: Program - Communication Program: Most patients will experience the loss of their voice as a result of ALS. With technology, patients are able to maintain their speech. We assist patients with attaining professional in-home speech evaluations; lead communication workshops and trainings, and purchase low-cost communication solutions.
"The ALS Association Greater Sacramento is a light-filled place with compassionate staff and volunteers, who provide care, help and education to people battling ALS. Our number one goal is to provide a safe place to learn, to be heard, and to make decisions. We serve every person with care specific to their needs and decisions, always respecting their choices. We love our patients, who teach us every day about perseverance and determination. They, in turn, leave each visit knowing that they have been heard, affirmed, and supported. Our community responds to our work by financially supporting us. As Executive Director, I am thankful to be a part of The ALS Association. The rewards for this work are tremendous as we work together toward our vision of a world without ALS."

Amy Sugimoto
Executive Director
ALS Association, Greater Sacramento Chapter