Down Syndrome Information Alliance


The Down Syndrome Information Alliance provides support and resources to empower individuals with Down syndrome, their families, and our community. We envision a community where people with Down syndrome are empowered, respected as individuals, and accepted as valued participants in neighborhood schools, community activities, and the business world.

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Address:5098 Foothills Drive, Suite 3-464
Roseville, CA 95747
County or Parish:Sacramento
Primary NTEE:Human Services 
Sub NTEE:Developmentally Disabled Services/Centers 
Executive Director:Heather Scott
Contact Email:info@downsyndromeinfo.org
Primary Phone:916-658-1686
Fax:916-914-1875
Website:http://www.downsyndromeinfo.org
After experiencing the educational, social, and support benefits offered by other Down syndrome advocacy groups around the country, the Bermudes, Green-Prieto, and Linn families - each having a young child with Down syndrome - formed the Down Syndrome Information Alliance. Together, with Sally Dominguez (whose granddaughter has Down syndrome) and Nicole Besoyan (whose daughter has Down syndrome), these families served as the founding Board of Directors. DSIA became affiliated with the National Down Syndrome Congress and the National Down Syndrome Society and began providing community services in late 2004. By mid-2005, DSIA had connected with local hospitals and became the local source of information for medical professionals and parents. In our first year, DSIA distributed 150 parent guides! DSIA now provides regular educational symposia, resources, support, activities, and myriad programs for the Down syndrome community.

Our top needs:
  1. Funding: Program - Funding for our Medical Outreach and DS 101 Programs. The DSIA Medical Outreach Program provides information and support to the medical community who is giving the families a diagnosis of Down syndrome and following up with care. The DS 101 program provid
  2. Funding: Other - Funding for a Down syndrome clinic - to have medical professionals with an expertise in Down syndrome and all the medical related conditions so that our adults with Ds are living longer, healthier lives.
  3. Space: Office or Other -
  4. Volunteers - Volunteers that are interested in event planning, fundraising and grant writing
Thank you for taking the time to learn more about DSIA. I am so proud of all DSIA has been able to do in 12 years. The support and information that we give to newly diagnosed families is unmatched. We have trained over 40 Parent Mentors to be able to provide one on one support to families. In addition, we provide so many educational and social opportunities for our families. We have recently started a Self Advocate program where teens and adults with DS are able to come together and make social connections. What I love about DSIA is the community that we have created and the voice that we give to the phrase 'More Alike Than Different.' Every day our families are breaking barriers and showing others what people with Down syndrome (and any disability) CAN do. It may look a little different or take a little longer, but the joy and love they give their families and community is unlike anything else. Again, thank you for taking the time to learn more about DSIA and for any donation you may feel to give. Your support changes lives.
-Heather Scott, President and Founding Member