Parkinson Association of Northern California
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Organization Details

Programs

Description
The Parkinson Association Quarterly convenes representatives of four of the regional Medical Systems, Kaiser Permanente, Sutter Health, UC Davis Health, and Dignity Health, as well as other professionals that serve the Parkinson's Community to discuss research, updates, challenges and solutions that they have encountered serving patients diagnosed with Parkinson's disease. This diverse group of neurological professionals, Neurologists, Movement Disorder Specialists, Physical Therapists, Clinical Social Workers, and Mental Health professionals who serve the Parkinson's Community use this opportunity to create a holistic picture of the needs of the Community and identifying what roles they can play in completing the picture.
Budget
$10,000
Program Successes
This past year topics, such as the newly instituted California Parkinson's Disease Registry, hallucinations and Parkinson's disease, the impact on the family and the need for mental health support have been debated and discussed providing opportunities for participants to leave with new insights and outlooks that will serve them in their work with the Parkinson's Community.
Description
The Parkinson Path Quarterly Journal is a publication that provides information, resources, and education to the Parkinson's Community. The articles are written by neurological medical professionals, mental health professionals as well as, members of the Parkinson's Community and provide education and inspiration to assist the families with Parkinson's as they "Build Community for the Journey."
Budget
$16,000
Program Successes
- The Parkinson Path primarily serves indivuduals who are currently engaged with the Parkinson's Community, People with Parkinson's, their Carepartners, family, friends and colleagues. Providing up to date information on the connections and resouces available in Northern California.
- The Parkinson Path is also.a tool used by a number of Neurologial professionals working at the 4 medical systems in the region use to connect families and newly dignoised People with Parkinson's where a member has been diagnosed with Parkinson's disease, to the existing resources and support systems as quickly as possible.
Engagement with the Parkinson's Community can provide the information and support that will impact their quality of life on the Parkinson's journey.
Description
The Parkinson Association of Northern California hosts an Annual Educational Conference. Distinguished presenters, national as well as local experts including Neurologists, Nutritionists, Physical Therapists, Wellness professionals, and inspirational speakers address questions and concerns that impact the Parkinson Community.

It is consistently one of the largest convenings of the Parkinson's Community on the West Coast.

Budget
$90,000
Program Successes
- The number of attendees has grown from 425 in 2014 to 860, venue capacity, in attendance at the 2019 Conference.
- The participant evaluations highlighted the timeliness of the topics and the quality of the speakers and presentations.
- Potential participants began to request registration information in January for this year's Conference which was held on October 26th.
Description
The Carepartner of a Person diagnosed with Parkinson's disease is on duty 24 hours a day. They provide healthy nutrition while managing medications, assist with movement challenges and keep their partner safe from falls, they advocate for their care as well as emotional well-being. As a life partner they are also on the Parkinson's journey.

The Parkinson Association recognizes that the health and well-being of Carepartners is critical to the Parkinson's Community. An opportunity for respite, time for taking care of their needs as well as self care with confidence their partner is being well care for serves the family and the Parkinson's Community. The Parkinson Association provides financial subsidies that allow Carepartners to access approximately 20 hours of Respite services in a calendar year.
Budget
$40,000
Program Successes
The request for this program continues to grow: In 2019, 88 carepartners were issued respite grants and approximately 1300 hours of services used. In 2020 due to COVID and fear of exposure we only had 50 requests for respite, but as vaccinations have become available in 2021 we have begun to see a surge of requests for respite. After being sheltered in place for a year, carepartners need this relief even more.

As the Parkinson's Community continues to grow the need will continue to grow and the Parkinson Association of Northern California is committed to meet that need.
Description
Research has shown that exercise and movement are extremely effective in delaying the progression of Parkinson's disease (PD) symptoms, reducing the impact of symptoms, and for some, increasing general well-being. The Parkinson Association of Northern California partnered with Kaiser Permanente Neuroscience to create an educational tool that provides the fitness and wellness communities with Information and strategies to most effectively serve the Parkinson's Community. The ParkinsonWISETraining is held quarterly throughout Northern California.

Professionals who have completed the training are listed on the Parkinson Association website to allow the Parkinson's Community to identity qualified options in their area.
Budget
$25,000
Program Successes
ParkinsonWISE has been presented to fitness and wellness professionals in 6 cities throughout Northern California. Over 100 professionals that are certified as ParkinsonWISE are listed on the Parkinson Association website (www.panctoday.org) accessible to the Parkinson's Community . The success of the program has spread throughout California and other states. In fact, the Parkinson Association has received requests for this training in four new cities, two of which are outside of Northern California.
Description
In a Parkinson's Support Group, members provide each other with non-professional and non-material assistance on the Parkinson's Journey. Support group members come together to share coping strategies, to feel more empowered and for a sense of community. They evaluate and share relevant information, relate personal experiences, listen to and accept others' experiences, provide empathy and understanding, and establish social networks. Support groups are a crucial component in the Parkinson's Community.

The Parkinson Association provides support to the 39 Groups spread throughout Northern California from Modesto to Redding and from Loyalton to Fort Bragg. The groups have autonomy. The Facilitator, with input from the group, decides the group's format. The Parkinson Association supplies the liability insurance, hosts an annual skills development workshop, maintains a website for resource information, and facilitates a network of communications among group leaders.
Budget
$8,000
Program Successes
The successes that come from Parkinson's Support Group meetings are personal to the attendees:
- Insight from speaking to others in a similar situation
- Ideas to overcome one of the many challenges facing those with Parkinson's, emotional as well as physical.

The fact that the Parkinson's Community continues to attend these meetings after 20 years speaks to their value. The number of Support Groups continues to grow and the numbers of attendees continue to grow as well. Still, there is a need to reach newly diagnosed people who would benefit from the Support Group programs.